CMORE56 on Nostr: ...

As my first Post since realizing that I did not understand Nostr Key management and losing access to my first Npub, I wanted to bring awareness to a frightening allergy that can be contracted through the bite of a tick. My wife got bit about 2 years ago and she has Alpha Gal Syndrome.

Yes, as some people know, you can't eat mammal meat as it contains a sugar (Alpha GAL) that you are allergic to. But what most don't know, if they've heard of this, is that many medicines and medical treatments are mammal based. Cat gut stiches out! Lidocaine at the dentist, NOPE! Most sugars are filtered through bone char.

It went undiagnosed for a long while as only about 25% of medical staff have even heard about this. I have been doing my own informal survey of people i encounter to see if they have awareness of this allergy. Most don't know of it.

It is so much more than just not eating mammal meat. Some people get GI issues and some people get anaphylactic shock. The problem is it isn't an every time allergy its an anytime allergy. Meaning you may get away with eating some things but you're playing a game of Russian Roulette.

My wife lost about 40 LBS in a few months before being diagnosed. Since diagnosis her health problems have improved but she is fume reactive . We are unable to go to most restaurants as the risk of cross contamination is to great. Even the smells of meat (especially smokehouse type places) can make her react. On vacations she must make sure the store has the items she can safely eat. There are so many components of food and supplements that are mammal based but you wouldn't know it.

There is a test for aplha gal that your doctor can order. Make sure they order the right one as there is a second test that seems similar and it is easy to mistake for a Dr. that is not familiar. If you have unexplainable symptoms such as severe GI issues that are not gluten related or get anaphylactic symptoms you might rule this out with the test.

I am affected also, i have to cook my meat outside at all times. Even outside with the doors closed and 2 Air scrubbers running full blast she still gets tingling in her mouth and face.

Also guys the alpha gal you eat can be spread sexually orally or vaginaly. I have had to wear condoms again despite getting a vasectomy prior to her diagnosis.

It is so much more than not eating meat and watching her suffer though this makes me want to spread awareness of this issue. It is so much more than not eating meat and watching my wife suffer though this makes me want to spread awareness of this issue. There are many good Facebook groups on this subject. I recommend joining some if you are diagnosed as it can be quite daunting at first. If you are very strongly reacting you may hesitate to eat anything. I liken it to a form of PTSD. You think every food wants to kill you.

I have attached a map of lone star tick habitat, but there are people in every state with this allergy. It is thought that Mosquitoes and Chiggers can carry this as well. More research needs to be done to confirm. Also it doesn't have to be a lone star tick. Even if it is a lone star tick only the females have the white dot.




She also has Lyme disease. There is a company in CO called Ticknology. They will test ticks you send them for various things. It costs about $40 but they will batch test together multiple ticks if you were bitten by multiple ticks.

I was bitten 3 times last year, and sent all 3 in to Ticknology, All 3 tested neg. Although Alpha Gal cannot be tested by them many other tick borne illnesses can.

As an owner of a large rural property I am always in their habitat. I have found a company called Sawyer makes an insecticide called permethrin, which can be sprayed on clothes and then allowed to dry. It will go through multiple washes before you need to reapply. Just be careful if you have cats . It is poisonous to them when wet. I spray outside and allow to dry.

This is spreading fast and we need to get more information out there. This is my attempt at that. I have not logged onto Facebook since 2011 and have never had any other social media, but Nostr peaked my interest.

Stay safe out there!