Jen on Nostr: My diagnosis is #LongCovid, but like many, #MECFS also fits my symptoms. People only ...
My diagnosis is #LongCovid, but like many, #MECFS also fits my symptoms.
People only see me on good days. I don't seem disabled.
Yesterday, I helped at a fête. I sat at a table, smiled at people, and helped them do craft.
Today, I slept OK, but I'm so tired I could cry. My head feels awful. My legs ache. I haven't washed. I'm not dressed. I can't get food. Writing this is so much effort it hurts. But I've had far worse days.
Please, see us on our bad days, too.
People only see me on good days. I don't seem disabled.
Yesterday, I helped at a fête. I sat at a table, smiled at people, and helped them do craft.
Today, I slept OK, but I'm so tired I could cry. My head feels awful. My legs ache. I haven't washed. I'm not dressed. I can't get food. Writing this is so much effort it hurts. But I've had far worse days.
Please, see us on our bad days, too.