What is Nostr?
/ Missedme
npub1ac9…z7mf
2023-04-17 15:55:58
in reply to nevent1q…azl6

Missedme on Nostr: She has found the best information at these sites. https://alphagalinformation.org/ ...

She has found the best information at these sites.

https://alphagalinformation.org/

https://www.lymedisease.org/members/lyme-times/special-issues/lyme-book-reviews/strasheim-lyme-disease-treatment/

She was told by many "Experts" that this was "Long Covid" (She got covid within three weeks of the tick bite,) The second article describes some of her symptoms exactly. Also most ticks can carry more than one thing.
She went to see a Doctor who is not part of the system, who believes she may have Babesia as well. She was told by many 'Doctors" to take Cymbalta (Anti Depression).

Another issue is so many items are mammal based.
Some Stitches (Cat Gut)
Heparin (Hart Attack Med)
IV Fluids other than saline

Even many of the supplements I had her on for covid

Shampoo
Makeup
Laundry Det
Dryer sheets

I believe she has PTSD like fear of trying anything new now for fear it may have mammal components. She has had to call the manufacturer to adk on so many items.

There is a Facebook group for Alpha-Gal with good info from people.
Alpha Gal Support Non Public (dont have to have Alpha Gal)
There is a Map feature where people map there general location.
Pretty interesting.

I got bit by 2 ticks last year and i appear to be fine but i havnt been tested.

Also Labcorp and Quest test are not accurate.
You need specialized testing at higher cost( Ins may not pay)
She took a test which cost $400
She is even fume reactive.
I had to cook my meats outside or her lips would start tingling.

SCARY STUFF!! 😱
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