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bebatjof /
npub1cmd…u8yz
2023-07-02 13:43:28

bebatjof on Nostr: There is so much information on twitter that's gonna be lost forever. In my case: ...

There is so much information on twitter that's gonna be lost forever.

In my case: LongCovid.

I still discover accounts with megathreads that are so, so useful. Even research from 2021 that isn't mainstream yet, that helps me to explain my symptoms to my doctor, that might get her to understand the dynamics better. And there's already so many deleted accounts and links that stopped working. For a person with LongCovid desperate to find info, it's heartbreaking to experience this.

It's all funny to see the fascists sink, and it's nice to build up a new (and way better and kinder) network here, but please realise it's also painful for some people to go through this.

#LongCovid #twitter
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npub1cmdazxrutt6rlkq8n57n0a6j4lrfcqjdr07fwa8lrw6rk3pykwzsdtu8yz