Susiebdds on Nostr: Rob, I’m so sorry to hear about your adorable boy and I’m so happy you were ...

Rob, I’m so sorry to hear about your adorable boy and I’m so happy you were encouraged. My son had a large type I VSD. We were told starting from the time he was 3 days old that he would need surgery imminently, but he continued to defy the odds and had no issues nursing and didn’t need medication. At 6 he started exhibiting an enlarged heart and some lung issues so surgery was necessary.
My advice for you is to do as much of your own research as possible on your son’s condition and find a surgeon who has performed the highest number of successful surgeries that your son needs. A surgeon’s pedigree is not as important as his skill.
Prayers to your family and that beautiful boy of yours.