LeoBurr :veripawed:🦁🐻 on Nostr: Folks who know me know I rabbit hole and get passionate about things that I deal with ...
Folks who know me know I rabbit hole and get passionate about things that I deal with in my daily life. Especially if they're technical.
On the line of my recent CPAP/BiPAP stuff, I am super, super fucking annoyed at how these companies that supposedly are in it to help out with our health are ultimately more interested in pushing machines and CPAP/BiPAP supplies.
To bolster my point, I've reviewed the settings of CPAPs from 3 folks who've asked for my help. ALL THREE of them were set wrong vs the data the machines generated. One was set to a range of 5-20 𝑐𝑚𝐻2𝑂. Guess what? The machine's fucking range is 5-20. They did no looking at the data whatsoever, and didn't look at mask leakage rates either. Therapy was not suitable as a result.
They didn't even set the fucking time zone. Just like they didn't on mine. But sure enough, Cellular was enabled, and they could've adjusted things remotely, but did they? No.
They are more interested in selling supplies and machines.
Start with a CPAP. Be "compliant" for 90 days. If you're uncomfortable the whole time, suck it. The sleep clinic isn't likely going to adjust anything. No one will really look at your data until you visit a pulmonologist, and even then, they may only look at a few lines of data in aggregate over 3 months (mine said much longer) before making changes to a machine/prescription.
What's that mean? Oh, you spend over a grand plus on a machine, then they get you to spend $1500-$3k on another machine that might actually help you more, but they'll be damned to even set that up correctly.
My pulmonologist wrote my new prescription for the machine I hacked my CPAP into (A Resmed AirCurve ASV) with my exact settings. They said they couldn't have done it better than me, and would hire me as a consultant if I wanted a part time gig.
I don't.
I'm enjoying helping folks out who have their CPAPs and their therapy as a black box of magic so that only suppliers have the keys to their data. Not everyone is savvy enough to hack their units or analyze their data. To those who are - You're ahead of the game.
For those who aren't, ie the majority - They're getting fucked.
I enjoy helping folks get a better night's sleep. Especially if it sticks it to these companies unfairly making money on the suffering of patients who are ostensibly getting treated by these bloodsuckers.
And I'm going to keep doing it.
On the line of my recent CPAP/BiPAP stuff, I am super, super fucking annoyed at how these companies that supposedly are in it to help out with our health are ultimately more interested in pushing machines and CPAP/BiPAP supplies.
To bolster my point, I've reviewed the settings of CPAPs from 3 folks who've asked for my help. ALL THREE of them were set wrong vs the data the machines generated. One was set to a range of 5-20 𝑐𝑚𝐻2𝑂. Guess what? The machine's fucking range is 5-20. They did no looking at the data whatsoever, and didn't look at mask leakage rates either. Therapy was not suitable as a result.
They didn't even set the fucking time zone. Just like they didn't on mine. But sure enough, Cellular was enabled, and they could've adjusted things remotely, but did they? No.
They are more interested in selling supplies and machines.
Start with a CPAP. Be "compliant" for 90 days. If you're uncomfortable the whole time, suck it. The sleep clinic isn't likely going to adjust anything. No one will really look at your data until you visit a pulmonologist, and even then, they may only look at a few lines of data in aggregate over 3 months (mine said much longer) before making changes to a machine/prescription.
What's that mean? Oh, you spend over a grand plus on a machine, then they get you to spend $1500-$3k on another machine that might actually help you more, but they'll be damned to even set that up correctly.
My pulmonologist wrote my new prescription for the machine I hacked my CPAP into (A Resmed AirCurve ASV) with my exact settings. They said they couldn't have done it better than me, and would hire me as a consultant if I wanted a part time gig.
I don't.
I'm enjoying helping folks out who have their CPAPs and their therapy as a black box of magic so that only suppliers have the keys to their data. Not everyone is savvy enough to hack their units or analyze their data. To those who are - You're ahead of the game.
For those who aren't, ie the majority - They're getting fucked.
I enjoy helping folks get a better night's sleep. Especially if it sticks it to these companies unfairly making money on the suffering of patients who are ostensibly getting treated by these bloodsuckers.
And I'm going to keep doing it.