Dr Ro Smith on Nostr: One of the things that makes #MECFS hardest to get diagnosed with is that I do not ...

One of the things that makes #MECFS hardest to get diagnosed with is that I do not think PEM is easy for PATIENTS to identify.

I'm pretty sure the first many times I asked whether my fatigue came with a delay I said 'no', because when you don't know what's going on you regularly push yourself to the point of crashing. Causes are either not obvious or are immediate, because it's a CRASH, not PEM. & when it is PEM, how is a patient supposed to put together that they feel shit today because they>