Dcgirl on Nostr: npub1zdl5u…9jnge Back then, doctor's weren't very knowledgeable about prion ...
npub1zdl5ujwy8zsdy8rac26la2usu4mjw8cs853nj9satleartsxm7nq39jnge (npub1zdl…jnge)
Back then, doctor's weren't very knowledgeable about prion disease. It is rare and not widely studied in med schools so when you present with double vision and ataxia they don't assume prion disease.
We were in Colombia Hospital in NYC and they sent in a doctor who sees almost every east coast case of CJD.
There is a non invasive test for CJD now which didn't exist back then.
He died without weeks of his first symptoms. It's a terrible disease.
Back then, doctor's weren't very knowledgeable about prion disease. It is rare and not widely studied in med schools so when you present with double vision and ataxia they don't assume prion disease.
We were in Colombia Hospital in NYC and they sent in a doctor who sees almost every east coast case of CJD.
There is a non invasive test for CJD now which didn't exist back then.
He died without weeks of his first symptoms. It's a terrible disease.