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ahimsa /
npub1hux…ffpv
2023-08-07 19:49:15
in reply to nevent1q…prpw

ahimsa on Nostr: npub1s7y9s…90lc3 Beats me! 🤷🏻‍♀️ I've had ME/CFS and POTS/Dysautonomia ...

npub1s7y9scn36s0e40nvgp2hr29mpl6daq8znyqtl0yap0l5zhkq7xmqg90lc3 (npub1s7y…0lc3) Beats me! 🤷🏻‍♀️

I've had ME/CFS and POTS/Dysautonomia since 1990, also triggered by a virus, and which has a lot of overlap with Long Covid (roughly half of Long Covid patients meet ME/CFS diagnostic criteria).

There are some meds for orthostatic intolerance. And there are meds that help some ME patients (e.g, LDN = low dose naltrexone). But these are very hit or miss -- for many folks these either only help a little (fewer symptoms, still disabled) or don't work at all!
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npub1huxuhp9hnu5yh97d66zx0xlrrnj9mfuanhq3fha20walt2jfyv2sx7ffpv