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Ellie🏳️‍⚧️ /
npub1f2g…5qt6
2023-12-27 17:09:05

Ellie🏳️‍⚧️ on Nostr: Every 8 weeks I get an infusion of a drug called Entyvio to keep me alive. The bitch ...

Every 8 weeks I get an infusion of a drug called Entyvio to keep me alive.

The bitch is it costs $22,000 every time and it HURTS. Its like getting a really bad flu, going thru opiate withdrawals, and taking a small dose of bad acid all at the same time. The bad reaction used to take a couple days to wear off. Now its usually calmed down within 12 hours or so and I just end up sleeping hard for a day.

Since we lost our insurance coverage when my wife got fired in October we were supposed to be COBRA'd in for 2 months but now the infusion people say they cant give me the meds tomorrow because our insurance isn't valid.

If i just lived in a real country I wouldn't be having a panic attack right now while Im on hold with the clinic.

I feel like im gonna puke and cry and just fall over and die. And it'd be a bit of a relief rn.
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