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"Samantha Dennison, 58, has been affected by neuroferritinopathy, a condition that leaves patients trapped in their own bodies. She is taking part in a trial to see if an existing drug, deferiprone, can remove the build-up of iron in the brain. The condition is rare, affecting only about 100 people worldwide, and usually results in patients losing the ability to talk or move while remaining fully aware of their surroundings. The trial, led by Prof Patrick Chinnery at the University of Cambridge, aims to find a treatment or cure for the condition."
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