Creative! Queer!! Autistic!!! on Nostr: Are there any communities for #Epilepsy like #ActuallyAutistic ? I’m not looking ...
Are there any communities for #Epilepsy like #ActuallyAutistic ?
I’m not looking for facts or statistics (yet), but lived experience.
That’s what’s been so valuable about npub1mewd58tz390gcnw0ml99alkzzgcuj2yg9tdsjwt45zga54rtsj8qketau6 (npub1mew…tau6) ; recognizing MY story in so many others and for the first time not feeling like an alien.
When I search “epilepsy”, I mostly find news about epilepsy, rather than the experiences of epileptics.
I’m not looking for facts or statistics (yet), but lived experience.
That’s what’s been so valuable about npub1mewd58tz390gcnw0ml99alkzzgcuj2yg9tdsjwt45zga54rtsj8qketau6 (npub1mew…tau6) ; recognizing MY story in so many others and for the first time not feeling like an alien.
When I search “epilepsy”, I mostly find news about epilepsy, rather than the experiences of epileptics.