Vereesh on Nostr: npub19djal…kn6qc I haven't seen the new instrument, and I'm only one patient, so my ...
npub19djal9d9t0zldup256dnakx4kswlat80kvl5d8e5qcdl4t795yesjkn6qc (npub19dj…n6qc)
I haven't seen the new instrument, and I'm only one patient, so my opinion is probably of no statistical value. Still, I've filled out many of these, and every single one of them has seemed to be written by people with little to no grasp of my illness, with questions that feel tangential at best to what I would consider relevant. Which is not, I think, a condemnation of people who are genuinely trying to help. Just that this is a very difficult illness to describe.
I haven't seen the new instrument, and I'm only one patient, so my opinion is probably of no statistical value. Still, I've filled out many of these, and every single one of them has seemed to be written by people with little to no grasp of my illness, with questions that feel tangential at best to what I would consider relevant. Which is not, I think, a condemnation of people who are genuinely trying to help. Just that this is a very difficult illness to describe.